The study aims to collect information about patients with CF to find out what treatments are commonly used for lung exacerbations and what outcomes result.
Then hopefully the information collected can be used to inform the design of the future BEAT CF trials where they investigate the best treatments to use in managing lung exacerbations or “tune ups”.
To find out if this trial is suitable for you please register below or contact our Clinical Trials Team at firstname.lastname@example.org or phone 6151 0888.
ELIGIBILITY & REQUIREMENTS
- Aged 18 or over with a diagnosis of cystic fibrosis.
- Give permission to access your medical records and collect information about you.
- Give permission for delegated research staff to access and record information about the impact of treatment.
- Answer 2 types of online surveys from your mobile phone, tablet or computer about how you are feeling every 3 months when you are well, and about your symptoms weekly during a lung exacerbation.
Dr Siobhain Mulrennan